Scleroderma yog tus kab mob tsawg tsawg uas ua rau tawv nqaij thiab lwm cov nqaij hauv lub cev kom tuab. Thaum tsis muaj kev kho rau scleroderma, muaj ntau txoj kev kho mob uas tuaj yeem yooj yim koj cov tsos mob thiab txhim kho koj lub neej zoo. Yog tias koj txhawj xeeb tias koj yuav muaj scleroderma, peb tau muab koj cov ntaub ntawv tag nrho koj xav tau txog kev txheeb xyuas tus kab mob li cas thiab kho li cas.
Cov kauj ruam
Lo lus nug 1 ntawm 6: Yav Tom Ntej thiab Ua Rau
Kauj Ruam 1. Scleroderma yog ib hom kab mob autoimmune ntev
Thaum koj muaj scleroderma, koj lub cev tiv thaiv kab mob yuam kev thiab ua rau cov nqaij noj qab nyob zoo. Qhov no ua rau kev tsim cov tawv nqaij tawv, zoo li caws pliav hauv koj cov tawv nqaij thiab lwm qhov hauv koj lub cev.
- Scleroderma kuj tseem yog kab mob rheumatic uas tuaj yeem ua rau mob, mob, o, thiab txhav hauv pob qij txha thiab cov leeg.
- Scleroderma tsis yog kis mob lossis hom mob qog noj ntshav, thiab nws tsis kis tau.
Kauj Ruam 2. Qhov xwm txheej tuaj yeem tsim tau hauv ib cheeb tsam lossis hauv kev
Localized scleroderma, tseem hu ua "morphea," tsuas cuam tshuam rau daim tawv nqaij. Systemic scleroderma, lossis "sclerosis," cuam tshuam rau thaj tsam loj ntawm daim tawv nqaij ib yam li koj lub nruab nrog cev.
Scleroderma hauv ib cheeb tsam feem ntau cuam tshuam rau ntawm daim tawv nqaij ntawm hauv siab lossis hauv plab thiab qee zaum ntawm koj txhais caj npab, txhais ceg, txhais tes, lossis ko taw. Nws tsis tshua kis mus rau lwm qhov hauv lub cev, txhais tau tias nws tsis zoo li thaj chaw scleroderma yuav tig mus ua kab mob scleroderma dhau sijhawm
Kauj Ruam 3. Scleroderma yog qhov tsawg
Tsuas yog kwv yees li 300, 000 tus neeg hauv Asmeskas muaj scleroderma-feem ntau ntawm lawv yog poj niam thaum muaj hnub nyoog 30 thiab 50. Thaum txiv neej tseem tuaj yeem kis tus kabmob, lawv muaj feem yuav kis tau ntau dua li poj niam.
Kauj Ruam 4. Qhov tseeb ua rau scleroderma tsis paub
Kev tsim cov collagen hauv daim tawv nqaij thiab lwm yam kabmob ua rau scleroderma, tab sis cov kws kho mob tsis paub tseeb tias vim li cas qhov no tshwm sim. Scleroderma qee zaum tshwm sim ua ke nrog lwm cov kab mob autoimmune.
- Scleroderma feem ntau tshwm sim rau cov neeg uas tau kis rau cov hmoov av silica, xws li cov neeg ua haujlwm hauv tsev, cov neeg ua haujlwm hauv tsev, thiab cov neeg ua haujlwm hauv tsev.
- Cov menyuam yaus nrog scleroderma feem ntau yuav muaj ntshav txheeb ze uas tseem muaj tus kabmob, ua rau cov kws kho mob ntseeg tias yuav muaj caj ces.
Nqe lus nug 2 ntawm 6: Cov tsos mob
Kauj Ruam 1. Cov tsos mob sib txawv nyob ntawm qhov twg ntawm lub cev cuam tshuam
Tawv tawv, tawv, tawv yog qhov cim ntawm scleroderma. Lwm cov tsos mob yuav tshwm sim nyob ntawm qhov tawv nqaij nyob qhov twg. Cov tsos mob no suav nrog:
- Plaub hau poob
- Qhuav, khaus tawv nqaij
- Cov tawv nqaij tsis muaj xim (qee zaum zoo li ntsev thiab kua txob, uas tej zaum yuav yog ib qho cim ntawm kab mob scleroderma)
- Kev sib koom ua ke thiab mob
- Cov nqaij ua kom luv thiab tsis muaj zog
Kauj Ruam 2. Koj cov ntiv tes thiab cov ntiv taw yuav tig xiav lossis tsaus muag
Tus mob no hu ua Raynaud tus kab mob, uas cov hlab ntshav me me hauv koj cov ntiv tes thiab ntiv taw sib cog lus. Qhov no tshwm sim los teb rau qhov txias txias lossis ntxhov siab.
Raynaud tus kab mob kuj tshwm sim rau cov neeg uas tsis muaj scleroderma. Txawm li cas los xij, nws yog ib qho ntawm thawj cov cim qhia tias koj yuav muaj kab mob scleroderma
Kauj Ruam 3. Qee qhov tsos mob qhia tias koj lub cev puas tsuaj
Yog tias koj muaj kab mob scleroderma, nws tuaj yeem cuam tshuam rau koj lub cev nruab nrog cev. Yog tsis kho, qee cov tsos mob no tuaj yeem ua rau tuag taus. Cov cim qhia tias scleroderma cuam tshuam rau lub cev sab hauv suav nrog:
- Kub siab
- Raws plab
- Cem quav
- Ntshav siab
- Lub plawv dhia txawv txav
- Ua tsis taus pa
- Tsis muaj kev sib deev tsav
Nqe lus nug 3 ntawm 6: Kev kuaj mob
Kauj Ruam 1. Mus ntsib kws kho mob dermatologist lossis rheumatologist rau kev kuaj mob
Dermatologists kuaj kab mob uas cuam tshuam rau ntawm daim tawv nqaij, thaum rheumatologists kuaj kab mob uas cuam tshuam rau pob qij txha, leeg nqaij, thiab pob txha. Ob leeg muaj kev paub nrog scleroderma.
Nws tuaj yeem siv sijhawm los kuaj mob, yog li ua siab ntev. Pab pawg txhawb nqa hauv online yuav tuaj yeem tawm tswv yim rau tus kws kho mob uas tau ntsib nrog tus kab mob
Kauj Ruam 2. Cov kws kho hniav feem ntau kuaj mob scleroderma los ntawm kev kuaj tawv nqaij
Tus kws kho tawv nqaij tshem tawm ib qho me me ntawm koj cov tawv nqaij uas tau tawv lossis tuab thiab saib nws hauv qab lub tsom iav. Thaum kuaj tsis tuaj yeem qhia rau tus kws kho mob tawv nqaij yog tias koj muaj scleroderma, nws tuaj yeem pab lawv txiav txim siab lwm txoj hauv kev.
Raws li cov txiaj ntsig ntawm kev kuaj lub cev, tus kws kho tawv nqaij yuav xaj kom kuaj ntxiv lossis xa koj mus rau lwm tus kws tshaj lij txhawm rau tshuaj xyuas
Kauj Ruam 3. Kev kuaj ntshav, xoo hluav taws xob, thiab lwm yam kev ntsuas kuj tseem pab kuaj mob scleroderma
Hmoov tsis zoo, tsis muaj ib qho kev kuaj mob uas tuaj yeem qhia tus kws kho mob meej yog tias koj muaj scleroderma. Txhua qhov kev ntsuas no pab koj tus kws kho mob tshem tawm lwm txoj hauv kev.
Nrog kev kuaj ntshav, koj tus kws kho mob yuav tshuaj xyuas cov tshuaj tiv thaiv kab mob antinuclear siab. Txawm hais tias tib neeg muaj lwm yam kab mob kuj muaj qhov no, nws tshwm sim hauv 95% ntawm cov neeg mob scleroderma
Nqe Lus Nug 4 ntawm 6: Kev Kho Mob
Kauj Ruam 1. Kev kho lub cev thiab kev ua haujlwm ua haujlwm tau zoo tshaj yog pib thaum ntxov
Kev kho lub cev thiab kev ua haujlwm pab koj ua kom koj cov kev tawm dag zog hauv koj cov pob qij txha thiab txo qis txhav. Lawv kuj tseem tuaj yeem txo qhov nruj ntawm koj cov tawv nqaij hla koj cov pob qij txha. Txawm li cas los xij, yog tias koj twb tau poob zoo me ntsis ntawm koj cov lus tsa suab thaum koj pib kho, koj yuav tsis tshua muaj qhov rov qab los.
Kauj Ruam 2. Tus kws kho hniav tuaj yeem kho cov teeb meem tawv nqaij
Yog tias koj tus scleroderma feem ntau cuam tshuam rau koj cov tawv nqaij, mus ntsib kws kho mob dermatologist kom kho. Lawv yuav txiav txim siab tias koj cov tawv nqaij tawv npaum li cas thiab qhia kev kho mob raws li qhov ntawd. Lawv yuav sim:
- Lotion los yog moisturizers
- Corticosteroids
- Camphor lossis menthol (rau khaus)
- Kev kho mob hnyav heev (IPL) (rau cov tawv nqaij tsis zoo)
- Kev kho UVA
- Laser kho (rau pom cov hlab ntsha)
Kauj Ruam 3. Tej zaum yuav siv tshuaj los tswj cov tsos mob
Nyob ntawm seb scleroderma cuam tshuam rau koj li cas, koj tus kws kho mob yuav sau ntawv tshuaj los pab daws qee yam. Cov tshuaj uas tau txais txiaj ntsig zoo rau cov neeg mob scleroderma tau tsim los rau:
- Txhawb lub cev tiv thaiv kab mob
- Tswj ntshav siab
- Txo qhov mob
- Tswj kev zom zaub mov muaj nuj nqi
- Tshem kub kub
Kauj Ruam 4. Kev phais tuaj yeem siv ua qhov kawg
Yog tias koj muaj kab mob scleroderma, nws feem ntau mob hnyav dhau sijhawm thiab tuaj yeem ua rau lwm yam teeb meem. Yog tias koj cov tsos mob tsis zoo tswj nrog tshuaj, koj tus kws kho mob yuav pom zoo kom phais. Qhov no yog tsawg heev.
- Qee tus neeg mob scleroderma muaj cov ntiv tes txiav tawm yog tias cov ntiv tes ntiv tes pib tuag vim yog mob Raynaud tus kab mob.
- Yog tias koj tsim teeb meem mob ntsws loj, yuav tsum hloov pauv lub ntsws.
Nqe lus nug 5 ntawm 6: Kev kwv yees
Kauj Ruam 1. Tsis muaj kev paub kho tus mob scleroderma
Tsoomfwv Meskas Khoom Noj thiab Tshuaj (FDA) tsis tau pom zoo ib yam tshuaj tshwj xeeb los kho tus mob scleroderma. Txhua qhov kev kho mob tig mus ncig ua kom pom cov tsos mob, tab sis lawv tsis ua rau tus kab mob nws tus kheej ploj mus.
Qee cov tshuaj tiv thaiv kab mob tiv thaiv kab mob tuaj yeem ua rau qeeb ntawm kev mob scleroderma, tab sis lawv tsis tso tseg kiag li thiab qhov xwm txheej yuav rov qab yog tias koj tsis noj tshuaj
Kauj Ruam 2. Cov neeg mob scleroderma feem ntau muaj lub neej zoo li qub
Txawm hais tias yog mob hnyav, scleroderma tsis feem ntau ua rau koj tuag ntxov dua li koj xav yog tias koj tsis muaj nws. Txawm li cas los xij, nws tuaj yeem ua rau muaj kev ntxhov siab ntau dua li ib txwm muaj.
Kauj Ruam 3. Scleroderma xav tau kev saib xyuas mob nkeeg tas mus li los tswj cov tsos mob
Yog tias koj tau kuaj pom tus mob scleroderma, ib txwm qhib nrog koj tus kws kho mob txog koj cov tsos mob thiab koj xav li cas. Txawm tias qee yam me me tuaj yeem txhim kho mus rau qee yam loj dua yog tias nws tsis raug hais sai.
- Koj tus mob yuav nyob ruaj khov thiab tus kab mob tuaj yeem mus rau qhov luv-lossis txawm tias kev zam lub sijhawm ntev. Txawm li cas los xij, koj yuav tsum tseem mus ntsib koj tus kws kho mob tas li thiab saib xyuas koj cov tsos mob kom zoo.
- Teeb meem ntawm daim tawv nqaij yuav ploj ntawm lawv tus kheej hauv 2-5 xyoos.
Nqe lus nug 6 ntawm 6: Cov ntaub ntawv ntxiv
Kauj Ruam 1. Koom nrog pab pawg txhawb nqa los pab daws
Pab pawg txhawb nqa online thiab hauv zej zog muab sijhawm rau koj kom qhuas nrog lwm tus uas muaj scleroderma. Nov yog qhov chaw los qhia kev tso dag, dab neeg, thiab xov xwm txog kev cog lus kho mob.
Vim tias kev ntxhov siab tuaj yeem cuam tshuam rau scleroderma qhov hnyav, cov txheej txheem tswj kev ntxhov siab tseem ceeb heev. Lwm tus neeg mob tuaj yeem faib cov txheej txheem uas tau ua haujlwm rau lawv
Kauj Ruam 2. Koom tes nrog kev tswj hwm koj tus kheej kev noj qab haus huv
Thaum koj tus kws kho mob tuaj yeem sau tshuaj noj thiab muab lwm yam kev kho mob uas pab koj tswj hwm koj cov tsos mob, koj muaj lub luag haujlwm los ua ib yam nkaus. Cov tswv yim pab tus kheej rau cov neeg mob scleroderma suav nrog:
- Hnav khaub ncaws ua khaub ncaws kom sov
- Tsis txhob txias thiab ntub ib puag ncig
- Txiav luam yeeb
- Hnav cov hnab looj tes roj hmab thaum siv tshuaj ntxuav tsev
- Tau txais kev tawm dag zog tas li
Kauj Ruam 3. Khaws koj cov tawv nqaij kom huv thiab tiv thaiv
Yog tias koj muaj scleroderma, koj cov tawv nqaij qhuav thiab tsis yooj yim-tshwj xeeb tshaj yog tawv tawv, tawv hauv cov cheeb tsam cuam tshuam. Ntxuav koj cov tawv nqaij maj mam muab thiab muab cov dej noo tso rau tam sim ntawd, tom qab ntawd npog nws nrog khaub ncaws kom sov.
Vim tias tattoos ua rau tawv nqaij, cov kws kho mob tawv nqaij qhia tawm tsam kom tau txais tattoo yog tias koj muaj scleroderma
Kauj Ruam 4. Tham nrog koj tus kws kho mob yog tias koj xav sim cev xeeb tub
Thaum koj tuaj yeem cev xeeb tub yog tias koj muaj scleroderma, muaj qhov pheej hmoo me me ntawm kev nchuav menyuam. Koj tus kws kho mob tuaj yeem ntsuas koj cov tsos mob tam sim no thiab qhia yog tias cev xeeb tub yog lub tswv yim zoo rau koj.
- Cov poj niam hluas nrog scleroderma muaj kev pheej hmoo ntawm kev muaj menyuam ntxiv piv rau cov poj niam laus uas twb muaj menyuam lawm.
- Cev xeeb tub ua rau muaj kev pheej hmoo ntau dua yog tias koj muaj kab mob scleroderma ntau dua yog tias koj tau nyob hauv thaj chaw scleroderma.
