Pediatric multiple sclerosis (MS) yog kab mob autoimmune uas tawm tsam koj lub paj hlwb. Nws yog qhov xwm txheej tsis tuaj yeem kho tau, tab sis muaj ntau txoj kev xaiv thaum nws los txog rau kev tswj hwm cov tsos mob, thiab ntau tus menyuam nrog MS mus ua lub neej puv thiab muaj kev zoo siab. Nco ntsoov, yog tias koj xav tias koj lossis koj tus menyuam muaj MS tab sis nws tseem tsis tau kuaj pom tseeb, koj yuav tsum tsis txhob xav tias phem tshaj. Cov tsos mob ntawm menyuam yaus ntawm MS zoo ib yam ntawm lwm yam kev mob, thiab muaj tsawg dua 5, 000 tus neeg mob ntawm MS hauv Tebchaws Meskas niaj hnub no, yog li nws tsis yog tshwj xeeb.
Cov kauj ruam
Nqe lus nug 1 ntawm 7: Tom qab
Kauj Ruam 1. Ntau yam sclerosis yog kab mob autoimmune uas cuam tshuam rau koj lub paj hlwb
Qhov mob ua rau koj lub cev cov qe ntshav dawb mus tom qab koj lub paj hlwb los ntawm lub hom phiaj myelin, uas yog txheej tiv thaiv npog tag nrho cov hlab ntsha hauv koj lub cev. Sij hawm dhau mus, qhov no ua rau mob, ua caws pliav, thiab ua rau lub paj hlwb puas.
Kauj Ruam 2. Qhov sib txawv tseem ceeb ntawm MS thiab kws kho menyuam yaus yog qhov pib
Yog tias koj muaj hnub nyoog qis dua 18 xyoo thaum koj cov tsos mob pib ua ntej, koj muaj menyuam yaus MS. Lwm yam tshaj qhov ntawd, nws tsis yog txhua yam sib txawv ntawm tus qauv MS. Koj tuaj yeem ntsib qhov tshwm sim me ntsis ntawm cov tsos mob nyob rau lub sijhawm nrog menyuam yaus MS, tab sis koj kuj tseem yuav rov zoo sai tom qab cov tsos mob tshwm sim.
Lo lus nug 2 ntawm 7: Ua rau
Kauj Ruam 1. Qhov ua rau tsis paub, tab sis muaj qee qhov tshwm sim muaj feem yuav tshwm sim
Kev tshawb fawb zoo li qhia tias koj cov noob caj noob ces yog qhov tseem ceeb. Nyob rau tib lub sijhawm, koj yuav muaj kev pheej hmoo siab dua ntawm kev tsim kho menyuam yaus yog tias koj tau raug cov pa luam yeeb thib ob lossis tshuaj tua kab, lossis yog tias koj muaj qib qis ntawm vitamin D hauv koj cov ntshav. Koj yuav muaj kev pheej hmoo siab dua yog tias koj rog dhau, ib yam. Koj kuj tseem yuav muaj kev pheej hmoo siab dua yog tias koj puas tau kis tus kab mob Epstein-Barr, feem ntau hu ua "mono."
Nqe lus nug 3 ntawm 7: Cov tsos mob
Kauj Ruam 1. Koj yuav ntsib kev qaug zog, leeg tsis muaj zog, tingling, lossis mob
MS tawm tsam koj lub paj hlwb, uas tuaj yeem ua rau lub siab xav ntau tus neeg piv rau "koob thiab koob." Koj kuj tseem yuav ntsib kev qaug zog, nqaij ntshiv, thiab nruj. Qhov no yuav ua rau koj nyuaj rau txav lossis tswj koj cov leeg. Koj kuj tseem yuav ntsib teeb meem txog kev pom kev, xws li qhov muag tsis pom qhov muag thiab ob lub zeem muag.
Kauj Ruam 2. Koj feem ntau yuav muaj cov tsos mob paub nrog tus kws kho menyuam yaus
Kwv yees li 1 ntawm 3 tus menyuam nrog MS tau ntsib qee yam kev paub tsis meej. Koj yuav pom koj tus kheej tawm tsam hauv tsev kawm vim tias koj muaj teeb meem nco qab cov ntaub ntawv lossis ua tib zoo mloog. Koj kuj tseem tuaj yeem nyuaj los txhais cov ntaub ntawv pom, ua kab lus tas, lossis nkag siab cov lus sib dhos.
Kauj Ruam 3. Koj cov tsos mob yuav tuaj thiab ploj mus
Nrog MS kho menyuam yaus, koj yuav luag yuav muaj hom MS hu ua relapsing-remitting. Qhov no txhais tau tias txhua yam tsos mob koj yuav tshwm sim ob peb hnub lossis ntau lub lis piam, thiab tom qab ntawd zoo li ploj ntawm lawv tus kheej. Qhov no yuav tshwm sim ntau thiab ntau dua, thiab txhua cov tsos mob tau paub tias yog rov qab los. Thaum lawv tawm mus, MS tau raug zam txim.
Nqe lus nug 4 ntawm 7: Kev kuaj mob
Kauj Ruam 1. Tus kws kho paj hlwb feem ntau yuav pib nrog kev kuaj mob yooj yim
Lawv yuav sau keeb kwm kev mob thiab nug koj kom piav qhia koj cov tsos mob. Tus kws kho mob yuav ua qhov kev kuaj mob paj hlwb kom pom tias koj txav koj lub qhov muag li cas, tswj koj txhais ceg, thiab tswj koj qhov nyiaj tshuav. Qhov no yuav pab lawv txiav txim tawm ntau yam xwm txheej.
Kauj Ruam 2. Cov kws kho mob feem ntau vam khom MRI txhawm rau txheeb xyuas qhov mob
Kev kuaj MRI yog qhov ntsuas tsis zoo uas yuav ua rau tus kws kho paj hlwb saib zoo dua ntawm koj lub paj hlwb. Lawv yuav saib rau qhov caws pliav ntawm cov hlab myelin uas npog koj lub paj hlwb. Lawv tseem yuav tshawb nrhiav qhov txhab hauv koj lub paj hlwb, tus txha caj qaum, lossis lub paj hlwb, uas yog txhua yam cim tseem ceeb ntawm MS. Yog tias lawv pom cov pov thawj ncaj qha ntawm MS, lawv tuaj yeem lees paub qhov kev kuaj mob.
Kauj Ruam 3. Koj tus kws kho mob kuj tseem tuaj yeem siv ntsuas ntshav lossis ntsuas lub lumbar
Pediatric MS tuaj yeem nyuaj rau txheeb xyuas vim tias cov tsos mob zoo li ntau yam ntawm lwm yam mob. Koj tus kws kho mob yuav xaj kom kuaj ntshav txhawm rau txheeb xyuas koj qib vitamin thiab txiav txim rau lwm tus neeg ua txhaum. Lawv kuj tseem tuaj yeem thov lub lumbar txhawm rau tshuaj xyuas cov kua hauv koj lub nraub qaum. Thaum kawg, lawv tuaj yeem xaj qhov kev sim ua pov thawj ib yam nkaus, qhov uas lawv sim koj lub zeem muag thiab ua haujlwm los ntawm kev qhia koj ntau yam qauv ntawm lub teeb.
Nqe lus nug 5 ntawm 7: Kev Kho Mob
Kauj Ruam 1. Cov peev txheej kho mob muaj xws li tshuaj steroids thiab immunoglobulin
Steroids yog qhov kev kho mob tseem ceeb thaum nws los txog rau tswj MS, thiab lawv yog txoj hauv kev zoo los txwv cov tsos mob thaum lawv tawg. Kev txhaj tshuaj tiv thaiv kab mob immunoglobulin yog tshuaj IV uas koj tus kws kho mob tuaj yeem hais qhia kom tiv thaiv koj tus MS kom tsis txhob tawg, txawm hais tias qhov no tsis yog thawj kab ntawm kev tiv thaiv.
Kauj Ruam 2. Tus kws kho mob yuav hais qhia hloov pauv ntshav rau cov tsos mob nyuaj
Yog tias koj tus MS tsis teb zoo rau kev kho ib txwm muaj, cov kws kho mob yuav hais qhia hloov pauv ntshav. Qhov kev kho mob no suav nrog caij tsheb kauj vab koj cov ntshav los ntxuav nws thiab tshem tawm cov tshuaj muaj teeb meem. Nws yuav tsum tau phais kab IV, thiab siv ob peb kab kev kho kom tiav.
Kauj Ruam 3. Qhov kev tiv thaiv qhov ncauj nkaus xwb uas koj tuaj yeem ua tau yog fingolimod (Gilenya)
Nov yog cov tshuaj noj txhua hnub uas txo qhov sib txawv ntawm kev rov zoo los ntawm kev txwv kev tiv thaiv kab mob hauv lub cev uas tawm tsam koj lub paj hlwb. Hmoov tsis zoo, koj yuav tsum tau kuaj ntshav ntau zaus thiab ua tib zoo saib xyuas thaum koj nyob ntawm ntiv tes txij li nws tuaj yeem ua rau koj muaj kev pheej hmoo kis tus kab mob thiab ua rau lub qhov muag, qhov xwm txheej uas cov kua dej ntau dhau hauv koj lub qhov muag thiab cuam tshuam koj lub zeem muag.
Nqe lus nug 6 ntawm 7: Kev kwv yees
Kauj Ruam 1. Hmoov tsis zoo, tsis muaj kev kho mob rau MS, txawm hais tias nws tuaj yeem tswj tau
Txhua qhov kev xaiv kho muaj tsom mus rau txo cov tsos mob thiab txo qis kev rov qab los. Thaum nws yog qhov tseeb tias cov tsos mob yuav mob zuj zus nyob rau lub sijhawm, thiab lawv tuaj yeem ua rau muaj kev xiam oob qhab, nws pab kom nco ntsoov tias muaj ntau tus neeg nrog MS nyob ntawd uas ua tiav, lub neej zoo siab.
Kauj Ruam 2. Koj yuav muaj MS rov qab tuaj, tab sis qhov no tuaj yeem hloov pauv
Thaum xub thawj, koj cov tsos mob yuav tuaj thiab ploj mus. Raws li tus kab mob loj zuj zus nyob rau 10-25 xyoos tom ntej no, nws yuav dhau mus ua theem nrab-vam meej MS (SPMS). SPMS yog theem uas lub paj hlwb puas tas mus li thiab cov tsos mob tsis mus rau hauv kev zam txim. Nws tsis yog 100% yuav tshwm sim, tab sis qhov txawv yog qhov nws yuav.
Kauj Ruam 3. Koj tseem tuaj yeem ua lub neej zoo siab, ua tiav
Ntau yam sclerosis yog qhov kuaj pom txaus ntshai, thiab nws yog ib qho mob hnyav tas mus li. Qhov ntawd tsis tau txhais hais tias koj tsis tuaj yeem txuas ntxiv mus rau lub hom phiaj, ua neeg nyob, lossis nyob twj ywm. Muaj ntau txoj kev kho tawm uas muaj txiaj ntsig zoo ntawm kev tswj hwm cov tsos mob thiab txhua qhov xwm txheej tsis zoo yuav tsis tshwm sim ntev. Tsis txhob cia tus kab mob no nres koj ntawm kev ua neej nyob zoo tshaj plaws!
Nqe lus nug 7 ntawm 7: Kev tiv thaiv
Kauj Ruam 1. Koj tuaj yeem txwv koj txoj kev pheej hmoo los ntawm kev ua kom nquag plias thiab tshav ntuj
Cov kev pheej hmoo rau MS suav nrog qib qis ntawm vitamin D thiab rog. Ua ib tus menyuam nquag, siv sijhawm ntau nyob hauv lub hnub, thiab noj zaub mov zoo yuav txo koj txoj kev pheej hmoo ntawm ntau yam sclerosis. Hmoov tsis zoo, txij li muaj ntau qhov kev tshuaj ntsuam caj ces, nws tsis yog 100% meej yog tias tus kab mob tuaj yeem tiv thaiv tau, txawm li cas los xij.
